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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I experience my symptoms in a way that I haven't seen described here, and I'm wondering if I'm the only one.
I have various symptoms through the day, worsening as the day wears on--weakness in my arms, legs, and neck, etc. But sometimes, usually in the evening, I have some sort of attack that lasts about half an hour. I get really weak, weak enough to collapse, all at once. Lately I'm also a bit short of breath when this happens. I lie down, and in half an hour or so I feel better. I used to take Mestinon when this happened, and in half an hour I'd feel better so I thought the Mestinon was making me stronger. But now I'm not taking it at all, and I get stronger in half an hour anyway. When I have these attacks, I can feel them coming on--they're not gradual. It's pretty extreme--I have to lie down or I'll end up on the floor. Does anyone else experience something similar? Thanks. Abby |
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