not everyone gets them because it really depends on ur neurologist and people over 60 make this a higher risk surgery im not quite 49 so i couldnt help you with that but any questions you have for me just fire away im happy to help and share my exp with people who might need this. im happy to hear that your neuro wants to jump right in....took me almost 2 yrs for me to convince my neuro to go with it. and request tht you get IVIG before hand....i feel like tht stuff is magic juice for MGers even after my surgery tht was yesterday, i feel 10 times better than i have in months next to the pain but thts a common side effect of someone cutting into you and removing a part of your body i guess

Brandon- glad your doing well man (as well as you can be haha your in the icu). Sounds like they're taking pretty good care of you, and all the tubes and ivs sound all normal from what I had. I bet you'll be out of there in no time- make sure to keep your lungs strong. I messed that part up and one collapsed.


Keep strong man

thanks a lot bro. Im down to just the lung drainage tubes now and they wanna kick me outta here tomorrow. but if anyone is around chicago i would recommend Northwestern for sure the nurse staff is amazing and the doctors do their job. cant really ask for much else.

Well that all sounds pretty good. They appear to have it down in chicago. UNC had it down pretty good as well. Hope you get out soon man.

I had my thymectomy in October of 09. I had a rough 6 months after the surgery, my mg got mad worse, but now it's getting slowly better- I'm on 14 pills a day and ivig every month but I think I'm closer to out of the woods than not.


Hope ur feeling good

so youre just now feeling the effects a year and a half after your surgery?

Yessir. First 6 were deadly, middle six alright, last 6 pretty well. It also could be imuran kicking in. Ill hold out hope for both

me too. i hope this thing slows down for you some. whats ur reaction to IVIG cuz i feel fricken awesome even after having the surgery 2 days ago and i hope this feeling never goes away again

by the way how was your recovery path? how much did it help you so sar? and how long ago was ur thymectomy?