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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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02-06-2011, 02:15 PM | #11 | ||
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02-06-2011, 06:06 PM | #12 | |||
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I had my thymectomy in October of 09. I had a rough 6 months after the surgery, my mg got mad worse, but now it's getting slowly better- I'm on 14 pills a day and ivig every month but I think I'm closer to out of the woods than not. Hope ur feeling good |
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02-06-2011, 07:29 PM | #13 | ||
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02-06-2011, 08:00 PM | #14 | |||
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02-06-2011, 09:25 PM | #15 | ||
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me too. i hope this thing slows down for you some. whats ur reaction to IVIG cuz i feel fricken awesome even after having the surgery 2 days ago and i hope this feeling never goes away again
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02-07-2011, 05:56 PM | #16 | |||
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Thanks dude. I hope you have a good recovery. I know a 17 yr old
Who had the thymectomy maybe 6 months ago and he is already in remission so there are definitely some quick success stories out there- knock on wood. The ivig isn't as good as the plasmapheresis I dont think but that's just me. It does make it so that I can work out so I'm not complaining about it at all but it's quicker maybe w plasmapheresis. Hope you got to get out today- it's impressive how fast your getting out, compared to my stay only a year and a half ago! Crazy. Be well man |
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02-07-2011, 06:36 PM | #17 | ||
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02-08-2011, 09:39 AM | #18 | |||
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Yeah dude you don't want to over do it, that's what I did, be careful please
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02-08-2011, 11:50 AM | #19 | ||
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