Annie there has been no change in my vision. My strength seems to be a bit better. I worked in the yard for about 2 hours the last couple of days without getting very tired. The neck thing just started. It starts sagging and hurts when I straighten it up. It feels as if my head weighs 100lbs. I don't think it's the mestinon.
Mike
Quote:
Originally Posted by AnnieB3
Ditto on what Sue said. I don't have any experience with IVIG, but even if I did I do know that everyone can react a bit differently.
What's the neck issue? More weakness? Have you backed off of Mestinon to see if you don't need as much now that you've had IVIG? If IVIG improves your MG, then taking too much Mestinon would make you "seem" like you are worse when you are indeed better. Too much Mestinon and you get weaker. Don't forget that. How are you between doses of Mestinon?
Annie
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