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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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02-23-2011, 09:26 AM | #1 | |||
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Has anyone here had IVIG treatments and it had no effect what so ever? I go today for my 5th treatment and so far no results.
Mike |
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02-23-2011, 09:42 AM | #2 | ||
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I've done IVIG, the effects aren;t immediate, except for usually getting a headache but that can be remedied with advil or tylenol. For me, the effects were more noticable when my MG was worse. Now, I only really have ocular MG. It's not a cure, it's more of a bandaid to help your body get stronger and hopefully stay there.
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"Thanks for this!" says: | pingpongman (02-23-2011) |
02-23-2011, 09:52 AM | #3 | |||
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So you don't notice any change until some time after the treatments are complete? I guess the effect is different for each person.
Thanks Mike |
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02-23-2011, 01:54 PM | #4 | |||
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Hey mike- I've been getting ivig for 6-7 months continually now, and it varies when I start feeling the effects.
My specialist says that it usually takes a week- or 2 for the effects to start kicking in. The purpose of ivig is to give others antibodies to bind against yours to destroy them- I believe and this all takes time. Hope you start feeling it soon |
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"Thanks for this!" says: | pingpongman (02-23-2011) |
02-23-2011, 05:29 PM | #5 | ||
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Quote:
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"Thanks for this!" says: | pingpongman (02-23-2011) |
02-23-2011, 09:40 PM | #6 | ||
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I'm keeping my fingers crossed that you see some improvement in the next week or two. Cate |
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"Thanks for this!" says: | pingpongman (02-24-2011) |
02-24-2011, 07:55 AM | #7 | |||
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Thanks Cate
My doctor spread my treatments out over 3 weeks. I'm thinking he did that because of my age. He is hoping the IVIG treatments will help me until the Imuran kicks in. The mestinon I take only helps me maintain my current status and doesn't improve anything however if I miss a dose my symtoms get worse. At least you and Tyson give me a glimmer of hope. Mike Quote:
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