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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Hey all, so i was wondering if you guys had any ideas about how to advocate about IVIG. I dont think the plex is working as well anymore, (especially last time) and im not horrible..but needing a nap EVERY day, atleast 3 hours..so i was wondering, do i just call my doctor and ask or what? Will he deny it?
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#2 | ||
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Do you sleep well at night? I suffer from insomnia, have suffered from it for years and years, old age, weight problems, and stress from work and life, and I love to take naps if I feel the need.I dont always relate my tiredness or weakness to MG one day if I had a poor night
If you feel strongly about it,(ivig) you should contact your physician and toss the idea to him. Only speaking for myself, I find the therapy totally amazing. |
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#3 | ||
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Quote:
. I have expierenced every condition this desease has to offerand I am very fortunate that my condition has improved. Starting around the start of this year. I do not know if my improvement is the result of the infusions, the cellcept, or both. Maybe neither? I wish I knew tony |
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