Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 03-01-2011, 08:48 PM #4
pingpongman's Avatar
pingpongman pingpongman is offline
Member
 
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
pingpongman pingpongman is offline
Member
pingpongman's Avatar
 
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
Default

Annie where does she live. I'm in SC near Charlotte, NC
Mike

Quote:
Originally Posted by AnnieB3 View Post
Hi, Harriet. Thanks for letting us know your name. You can't always tell by the forum name.

I'm a bit confused. Why would you have to darken the house to get rid of any gastric issue? Are you sensitive to light?

Gastroparesis would imply that your GI tract does not get food going through it. There are a lot of causes of that, including MG.

It sounds like you might want to be tested for a potential autonomic issue as well as the MG.

I hope you will at least consult a gastroenterologist for the GI tract issues. Neuros can only do so much. And maybe your internist/primary doctor could help with anything else.

You'd be surprised at how little B12 from food is absorbed, especially since you are on a proton pump inhibitor. No wonder your GI tract is messed up. We all NEED stomach acid! It gets the whole GI process going. I get my B12, by the way, at www.iherb.com because of their reduction of cost. I like the Jarrow Formulas brand (5 mg.) of sublingual B12.

It sounds like you are very sensible and have good doctors. I'm sorry that the Mestinon wasn't quite doing it for you.

Does anyone know of any good doctors in her area?

Annie
pingpongman is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (03-04-2011)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 07:52 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.