[Annie59]

AS I said here my neuro takes vit D deficiency very seriously and had readliy gone along with me getting IV fluids so I wouldnt get miserable taking the 50K pills the docotrs an prescribe for this. It was a relief when I was seeming to tolerate it and the fluids made me stronger and even breath better!

Well with the CT scan of my tummy sched for tomorrow and being oddly sick I got the copies of the blood work they do when I go get fluids and I got the vit D results I got after being off the vit D for 2 weeks when I first was getting sicker and got something I thought was the flu. Good grief it was only 31.7!!!!! The test I had just before I started showed me at 29. I have had 3 -50K doses that started 2-12. There was a 2 week break and I restarted for last 2 weeks. I had the vit D test the day before I restarted to get a truer result.

I had been noticing that since about 2 1/2 weeks in I didnt get the same boost. And when I took that break it was as if any improvment just plummeted. I went so quickly into the old symptoms I get (some of) of the way I was in the beginning when vit D was so low and parathyroid was elevated. Even today I am frustrated with myself as I let this person at the utility company get to me which is not normal. And this morn I went into immediate fussing on what my family doc did last Friday. This I dont like cause I know its not me. I hate that emotional change every bit as much as the weaker muscles it causes.

There is some unique things in my general blood test they do weekly at the fluids. The BUN is always low. And the BUN/creatinine has been dropping steadiliy since I started. I sure hope hope something shows up on the CT tomorrow.


Annie59

[mrsD]

The 50,000 IU D2 that doctors prescribe... doesn't work well.

The newest information is that is is 87% less effective.

http://neurotalk.psychcentral.com/post735110-42.html

You can buy D3 (all is over the counter), in 50,000 IU or 10,000IU and down.

You are spinning your wheels and wasting time with the RX version which is D2, according to latest research.

[Annie59]

I will share this with my doc. If he will still give me fluids I can take the other but only if he does. I started to become intolerant to even small doses of 800 then even 200 several years ago. I tried both D2 and D3 and it made no diference. Both made me sicker in ways that have nothing to do with vit D. What I had learned was that fluids could help me tolerate it and it has. I still get dryer but at a tolerable level when taking it with the 2 bags of IV fluids. It did makes more of a difference at first. The first 3 weeks I felt some of the same signs I would get from tanning/getting sun. Not now. Something in me is broke. I havve intolerance to food and meds some more than others. It has escalated rapidsly since I went on the vit D2. I was getting worse tho before I took the D tho more slowly over the past months.

If I were able to tan I would still do that. I love it and it works the best. I recovered so fast and well from that in 2007. It was an amazing turn around. But I cant take the heat for my MG and I cant get there enough with as sick as I am. I tried before the holidays to see if I could there enough and arranged for my aid to take me with a letter from my endocrinologist. I started to get worse from the heat that outweighed the better from the tan in the long run.

Annie59