[teelae]

My symptoms are not everyday. I initially had an AchR binding ATB which was 1.39, then a couple months later I had 2 neg AchhR binding ATB. My new neuro told me that since I only have intermittent blurriness of vision, no ptosis, only now and then muscle weakness, and no end of day muscle fatigue, that I probably do not have MG. When he did the clinical muscle pushing with his hands on my shoulders, legs, thumbs (repetitive) I showed no muscle fatiguing. I get blurriness now and then, my muscles get tired (brushing my hair), walking. But I dont have it all the time. He said that MG fluctuates in a DAY, not one day here and one day there etc. I was within days of a thymectomy and I cancelled it to get this second opinion. He also said that with MG you have ptosis and I do not. He also said that you cannot go from a positive to a neg AchR binding. Only if you have a high titer, it can decrease, but it never goes to a negative. He feels that my original 1.39 was an error, and I should not have been positive. My first neurologist says I have it, now this one says I don't. My thymus is just residual tissue, not hyperplastic. My swallowing is fine, but my throat kind of closes up with cold drinks, and sometimes it takes forever in transit time when I eat something like broccoli - it gets kind of stuck in my lower esophagus for hours. Again, my neuro said if you have swallow/throat MG it is all the time, not intermittent days at a time in between episodes. I have no trouble with swallowing in general. Sometimes I get short of breath when I have to talk louder than normal, it will wear me out, but again it is not all the time,. Can you guys give me some insight and input in all of this. I am more confused than ever now. I don't know which neuro to believe. Teelae