I was diagnosed six months ago. Have been receiving IVIG. They don't seem to work. Help!! Also, I have to learn to navigate so please don't let me get lost. Thanks.

HI Sunshine - - glad you found this great site for MG!

What medications are you taking now besides the IVIG - and how often is your IVIG? What meds have you tried in the past?

What is your neuro saying?

The reason I ask is because there are many different approaches to treatment and they can be influenced by medical history (like condition of thymus, previous meds, duration/progression of symptoms, any other autoimmune diseases), age, desired level of activity, etc.

Some folks here who have not responded to IVIG have said they did better with plasmapheresis. Others use combination therapy - like pred and cellcept with occasional IVIG.

Unfortunately, there is no pat answer - sometimes it truly does boil down to trial and error to find the best treatment for an individual.

There are other folks here who have far more first hand experience than I (who only take Mestinon). I'm sure they will share their thoughts (it just may not be today because of the Easter weekend and family gatherings).

Again, welcome.