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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Senior Member
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Hey, Tyson, how many times have you had your blood tested for antibodies? Would it be worth asking to be tested again? My neuro has tested me three times already, because he says he has patients who test negative at first, and then positive later. Wouldn't it be great if you could get that positive test, so you'd be OK'd for the new treatment?
Abby |
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Member
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Hey mike- they do an liver function test every month to check the effectiveness. I've been on it 7 months almost 8. So it should have started working I would think..
I've been tested 3 times just had it done before an ivig treatment and it still showed up negative.. So not sure what's up w that. But I agree w the auto immune disease..I just wish I had antibodies I guess |
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"Thanks for this!" says: | pingpongman (04-29-2011) |
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