Quote:
Originally Posted by Stellatum
I don't know why this was so hard for me. I think I was afraid that if I asked the doctor to submit the form, I would discover that he doesn't really believe me about how bad my illness is, because he usually sees me in the mornings, when I don't look so bad...but of course my fears were unfounded. Thanks to all who encouraged me on this. I think there's something pscyhologically difficult about having an up and down disease like this: you start to doubt yourself.
He asked me if I had had any falls, and I told him just the one off my walker, which wasn't due to myasthenia but to stupidity, which is an incurable disease. It is a treatable disease, though: I won't be riding my walker around any more, I can tell you that. I wonder if you can get a handicapped parking certificate for stupidity.
Abby
who's plenty smart in ways that don't have to do with common sense
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1. You are right, one of the hardest thing about this illness is its unpredictable nature.
2. sounds like you have a really good neurologist.
3. Your fall was because of your myasthenia.
4. walkers are not meant to ride on, they invented wheelchairs for that purpose.
5. It took me a very long time (way to long) to admit that I need one, but once I got over this psychological barrier, it made my life significantly better. (e.g-for the first time in three years, I could actually see more then one picture, that happened to be located next to the entrance, in the museum).
6. we are probably all quite stupid when it comes to dealing with this illness. Fortunately, they don't test your qualifications as a patient in medical school, or else I would have probably failed all the exams.
7. sometimes we can learn from the mistakes of others, and sometimes we just have to make our own mistakes.
04-30-2011, 01:33 AM
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