Mrs. D. not to doubt your knowledge at all, yet in the past couple months where I have been so strong...my diet hasnt been stringent or limiting at all and I felt great. I ate candy, donuts, etc as a teen would and felt better than when I try to diet on special foods as you suggested above. Im convinced that food doesnt necessarily help the body with immune problems- maybe issues due to medications such as salt, but I highly do not think my disesae will be cured or helped by changing my diet.

Please read that link I gave--- it explains how prednisone works.

One factor, Tyson, is that while you are taking it, it gives a false sense of energy...this is common in those on it. It can raise blood sugar and fuel this effect. When you come off of it, this is gone. The energy and in some people mental energy as well...drops suddenly. The adrenals scramble to restart your own cortisol production, and that takes a while...more than just a few days in many cases.

You want to feel less weak? How much of your weakness is due to the therapy and prednisone (a known causer of weakness--including paradoxical muscle weakness) and how much from your MG? Your next test may show that result..you'll have to wait and see. But for anyone with chronic illness, eating good nutritious food, high in protein, antioxidants and electrolytes, is always helpful.

The study data on what prednisone does to the metabolic status of the body is very well known medically today. I would hope you as a potential doctor would be fascinated with this part of your experience and would learn about it and facilitate your situation.

I'll just chalk up your resistance to youth and inexperience. Others here have posted over the years their experiences with various nutritional and supplemental supports. Diet, will not cure MG... but it can make your day go better, and give you some support to do activities that you want...like school, some exercise.

I did briefly read over the article and I found some of it very helpful, yet most of it stuff that I already have read/know. I found some of it to be false to my knowledge because some of the side affects it says it does NOT give- I have from prednisone, knowingly.

You can link my apprehension to young age and *inexperience* if you would like- yet I never said I didnt think supplements worked, I just dont think changing my diet it going to make my fatigue become lesser of an issue and maybe thats something that will change. I would assume with every doctor ive seen (3 MG specialists) that one of them would have sugguested my dieting be a regular thing- yet none of them even with failure of a few meds have said anything.

It is very true that today, doctors do not address a person's diet and lifestyle. Some doctors today, like Dr. Andrew Weil MD from Harvard are working very hard to change that to have nutritional classes given to students in med school, to enable them to be better doctors in the field.

Today the purpose and training of doctors is to identify and treat.
Prevention and support are mostly non-existant. But that is slowing changing. You see specialists who only address your MG...that is very typical.

Today doctors only give drugs... that's it unless they are specialists in holistic medicine. There is much to life besides the drugs and every day we see studies about this on the net.
The MS community has found diet and some supplements very helpful. Some get off their MS drugs entirely.

At this point in your life, I see the long term effects of your prednisone the main issue. What it did to you for months, and how you will recover from using it. Pred is draining, and exhausting. If you want more strength and energy, you can find it thru eating wisely. High sugar intake eventually will exhaust your pancreas. It is not unknown today for young people in your age group to become type II diabetics.

Taking the really strong drugs for MG is very complex, and confusing, and since we cannot look inside each person to see the contributions of the debilitating drugs vs the MG process for the most part, then any factor the patient can do to improve their status, may be very helpful in the long run.

Also- as every one says, each MG patient is different

I agree doctors today, need to (and hopefully are) being educated on the more *all around* medical issues such as prescribing certain medications that have adverse affects on the body...I hope they get this under control bcause we really could use it. How am I supposed to know what to eat/not to eat if they dont tell me or what supplements to take?

Im surprised I dont have diabetes yet, when I was a child I ate so much candy and it hasnt changed that drastically, but im trying bit by bit, especially refined sugars and bad fats.

Taking all these strong drugs does get confusing, there should be a doctor who specializes in just getting people to eat right with what medications they are on and special supplements there probably is...

Do this, next time you go to the doctor. Request a Vit D serum test. It would be very helpful to know where you are with this.

Many people on all the boards here test very very low. Almost all the doctors are doing the tests now.

Low D levels are implicated in autoimmune disease. And Prednisone depletes it besides.

This link on our Vitamin forum explains the new research on Vit D and has medical videos and links.

http://neurotalk.psychcentral.com/thread92116.html

Do this one thing for yourself at this point, at least.

Mrs D. I take 50,000 units of Vit D 2x a week. So it should be where its supposed to be, id hope

Are you taking the RX D from the doctor?

If so don't expect much response. Studies show that the RX D which is D2 (from plants) doesn't work much in humans. Doctors tend to use this 40 yr old version still, because it is covered on insurance and it makes them look good..big numbers and all. But it just doesn't produce good results long term.

I'd get that D test to see where you are now. Do you have the results from the first test? It would be helpful to know that.

Get another test... and we'll see. Please read that thread I gave you... all the information you need is there. Medical videos from US and Australia...as well.

The new studies show D2 (the RX one) is 87% less effective than the OTC D3. That report is on that link also.
You need more than hope.... you need facts and positive results.

Yeah it is from my neurologist...thanks. Ill check it out