Wow, you all are really hitting the nail on the head for me with this discussion...

I am really thinking I need to get out of denial about how limited I am and ask for what I need right now. I mean, this weakness and lack of stamina may be a temporary issue but it is significant at the moment. My husband drops me off and picks me up at the door everywhere we go right now. If I had to do this on my own, it would absolutely be impossible. I am self-employed and have worked next to zero hours a month over the last year. If I had to work, I couldn't but since I am self employed and there is no impact, I have just avoided the fact that I have not had the stamina to do it. Maybe if I could conserve more energy, I would have more stamina to do the things I need or want to do. And people probably don't have a clue in my case, including my neuro....hmmmmmmm

Abby, thanks for getting the word out. You are a trailblazer : )

debra