I checked with my pharmacist yesterday and found out my mestinon and cellcept is covered. mestinon has a $8.00 co-pay. Cellcept is another story.

I have been taking name brand cellcept and to continue my co-pay will be over $350.00 a month. The generic is $44.00 but I will have to get a new prescription because it was written with do not substitute on my request after one month on the generic that caused more stomach problems than the brand name. I think I'll try the generic again.

Because of the change in status of my insurance, I am still waiting for approval for my infusions that I was supposed to have yesterday and the day before. No idea what to expect. I do not expect it to be as reasonable as my previous insurance that had a $250.00 yearly deductable.

Tony

I confirm that Mythelase is commonly used in France as an alternative to Mestinon.
Neuro's usually start with Mestinon and if there is any problem with it, switch to Mythelase.
Maurice.

I don't know how useful this info. will be and for who, but I recently started taking mytelase, by my neurologist's recommendation based on some observations that it may be better than mestinon in MuSK, and at least for now, this seems to be the case for me.

I don't have any good explanation for this, but as opposed to mestinon (which I stopped taking due to its hechtic effect on my illness) it has a much more stable and predictable effect.

It is longer acting and has a somewhat different mode of action than mestinon. For some reason mestinon is preferred by most neurologists (in fact none of my previous neurologists ever mentioned mytelase or suggested trying it).

Thank you for this post for sure because the mestinon gives me erratic results and messes with my stomach big time so this kind of sounds exactly like what I need. My neuro never said anything about this medication and now im moving to a new one after the new year so it would be a good time to maybe try to change up my medication regimen.(my old neuro was hard to get to try new things)

Some of us can't give up on attaining Mytelase. It is the only drug that works for us. I don't know the reason why Mestinon doesn't work but it never has. In fact, Mytelase has always been more expensive and harder to attain. I would not switch to it if you aren't currently using it. If you are using Mytelase then we have a problem. Right now I am working on attaining it from the DEA or maybe France, if necessary. The drug company doesn't have to allow anyone new to have the drug but those of us who have been using it for years should have access until we die. It seems like the ethical thing to do. As we "oldies" expire then the drug will no longer be available to anyone. But you can't just discontiue it in mid stream. I will have to go back on a respirator full time and not be able to swallow or talk. So the effects for me are severe. I may be able to walk a little and use my arms for part of the day but nothing else works. I know this from past experience. Times are tough.