Those of you who have gone through dx shinanigans will get a chuckle out of this.

I am sero-neg, and very borderline SFEMG (as of tests 2 years ago). I take Mestinon every day as prescribed by my neuro (who was never hung up on the negative test results.)

So a few months ago, I apply for private healthcare insurance. I'm healthy with no dx documented by any test results. But I got rejected by every company to which I applied. Reason?

I take Mestinon and that means I have MG which therefore means I am only insurable through a High Risk Pool!!! .... with a high risk premium!!

Don't ya just love it??!!

suev, do you think that maybe you weren't approved because someone with a credential didn't fill out the form for you?

If you could have a doc fill out that form, I would highly recommend the one I saw. He would definitely leave out that you take Mestinon! If you've had any respiratory paralysis, he would leave that out too. I have little doubt that he would leave out a borderline SFEMG.

When I saw him, he became very interested in my big toe after stimulating it with a vibrometer so the only caveat would be that you might get your toes tickled (the insurance company told me that none of the criteria for an EMG is based on the big toe and I had to explain that that was only a side perk and that actually I hadn't even wanted to be stimulated in such a fashion!)

If you apply elsewhere, PM me so you can get someone really good in that he knows the new guidelines for writing to an insurance company!

Everyone else, thanks for the comments. It sounds like the new guidelines have been in the works for a bit (maybe why they appear to be phantom) and entail listing the same disease four times in a DDx and a coven of neurologists who examine blood and electric shock data they collect (but only sometimes) mostly for sport but but sometimes not and without which activity they can still feel comfortable. I'll be on the lookout!

I have long harbored the thought that those diabolical vermin were only shocking (aka tazing) me for fun and sport....glad I'm not the only one who feels that way!