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Poll: anitbody positive or negative?

View Poll Results: Have you tested positive for MG antibodies (AChR or MuSK)?
Yes, I have tested positive at least once. 10 71.43%
Yes, I have tested positive at least once.
10 71.43%
No. I am diagnosed with MG but have never tested positive for antibodies. 2 14.29%
No. I am diagnosed with MG but have never tested positive for antibodies.
2 14.29%
No. I think I may have MG, but I'm not diagnosed and I have not tested positive for antibodies. 2 14.29%
No. I think I may have MG, but I'm not diagnosed and I have not tested positive for antibodies.
2 14.29%
Voters: 14. You may not vote on this poll

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Old 08-01-2011, 08:03 AM #1
Stellatum Stellatum is offline
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Default Poll: anitbody positive or negative?
It seems to me that a disproportionate number of us have tested negative for antibodies, and I'm curious to see what the numbers are here.

Please respond, even if you don't post here. Thank you!
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Old 08-01-2011, 06:22 PM #2
Ken0710 Ken0710 is offline
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I am negative. I just officially got my genetic tests back revealing everything else is normal leaving MG as the diagnosis. I don't want to take over your post but I am looking for other opinions as far as a thymectomy...my doc of course continues to say he cannot say for sure it will work since I am seronegative but we both agree it won'tmake it worse. Plus there is the timing. I am in the Army but will now be discharged b/c of MG so it would be wise to do the surgery first since idk where I will end up. It seems the docs at UNC are some of the best so I would want them to do it while I am here. Please, any thoughts would be appreciated. Thank you

Ken
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Old 08-02-2011, 11:58 AM #3
Brennan068 Brennan068 is offline
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AChr positive here.
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Old 08-03-2011, 12:41 AM #4
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MuSK positive in a cell based assay (still considered an experimental test and not done routinely). Was negative for AchR (at least 3 times), MuSK (2 times) when tested in the common assays, and also negative for Ryanodine R.
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Old 08-06-2011, 05:45 AM #5
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Negative on all blood tests - tested at least 4 times for Musk and ACHr.
Negative SFEMG's - 4 times
Positive on ice pack test x 3
1 positive 1 negative Tensilon test.

I still believe I have MG, although I have now been diagnosed with Postural orthostatic tachycardia and ehler danlos syndrome. These 2 syndromes do not explain my worsening double vision or unilaterl / bilateral ptosis or my response to mestinon (resolves ptosis).

Rach
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Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.

My blog address is
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.


Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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