i need to vent and get some ideas/advice. I have been working with my neuro regarding getting some plasmapheresis treatments. Apparently even if I go inpatient, the doctor is concerned that the insurace my not cover it. From what I understand is that my symptoms are not bad enough to have this. He did say to go to the ER if I was having probs breathing & swallowing.

So last night, I got double vision then I had such weakness that my legs would not support me whatsoever, I couldn't move my arms, and my neck just flopped. On top of that I was gasping for air. So I went into the ER in town (only 4 miles away), but really wish I could have gotten to my neuro a few hundred miles away... but I knew that wasn't wise.

So I got to the ER, and they knew nothing about MG. They tell me if my pulmonary tests get any worse, they will put me in the ICU and start plasa pheresis. If i start aspirating my food, they will put me in as well. I'm annoyed.... I am so weak, can hardly walk, short of breath, and totally exhausted, but they want me to get worse first?

Any thoughts? I contacted my neuroloist and they said thaat I could get transferred to them, but... i don't want to go through all of this evaluation stuff just to get sent home.