My first symptom was fatigue. I had it for several months. Then I slowly couldn't carry things. Started with heavy things and ended with not being able to hold a glass of water. With my legs I first couldn't skate as long as I was. I was training to start roller derby. My knees felt weak. Then I could no longer dance, run, jog. All I could do was walk. One of my eye lids wouldn't open all the way. Everything just started progressing after that. I couldn't chew food after a period of time. I couldn't talk because the muscles in my mouth were tired. I started seeing double and halos on every light. When I was finally diagnosed the bottom part of my lungs were no longer expanding. I was put in the hospital the week of thanksgiving 2008. It took about a year to get that far. I started with an ivig treatment. They didn't want to just start me on prednisone. The concern was that I would take a step back and get worse. I was on prednisone for a year. I started with around 100mg every other day. I also was taking mestinon. After a year of treatment I am pretty much medicine free. I only get fatigued some days. Nothing more. I hope this will last forever.

mt onset was so slow tht my doctor went from thinking it was stress related due to me leaving for school, then he thought it was a food allergy, then asthema, then he was finally dumbfounded enough to send me out of his office to an ear nose and throat guy (yea random for this disease) and of all the doctor visits i had he would be the guy to dx me after like 2.5 yrs of not knowing what was wrong with me