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View Poll Results: Did your MG symptoms appear suddenly or over time? And how mild/severe is your MG?
My MG symptoms appeared suddenly, I have a mild form of MG 3 25.00%
My MG symptoms appeared suddenly, I have a mild form of MG
3 25.00%
My MG symptoms appeared suddenly, I have a more severe form of MG 2 16.67%
My MG symptoms appeared suddenly, I have a more severe form of MG
2 16.67%
My MG symptoms appeared gradually over several months or years, I have a mild form of MG 6 50.00%
My MG symptoms appeared gradually over several months or years, I have a mild form of MG
6 50.00%
My MG symptoms appeared gradually over several months or years, I have a more severe form of MG 1 8.33%
My MG symptoms appeared gradually over several months or years, I have a more severe form of MG
1 8.33%
Voters: 12. You may not vote on this poll

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Old 08-20-2011, 11:51 AM #11
KatG11 KatG11 is offline
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KatG11 KatG11 is offline
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Quote:
Originally Posted by klynng View Post
Our stories are very similar; I was diagnosed in May with a mild case of MG. I struggle with the same thing - it's really hard to know what's MG related versus what is anxiety or something else. Last night I went out to dinner with friends and I was laughing and smiling a lot (a good thing!) but my smile muslces actually started to feel tired. Was I just laughing/smiling more than usual or was it MG? I've had the same breathing thing too - feeling like it's hard to take a full breath but not sure if it was MG or anxiety. I'm trying to listen to my body but since I'm young and otherwise very healthy and active, I don't want to make more of this than it is (since I was diagnosed with a mild case - I know that for others MG is certainly a very big deal and not to be taken lightly), if that makes sense. Maybe we can share tips as we start to figure it out .

I'm only Mestinon right now too. The uncertainty of what MG may bring in the future is a challenge but I've also tried to use it as motivation to take the absolute best care of myself that I can. I am strict about going to bed on time, I don't drink, and I eat only whole foods. Those have certainly been really positive changes for me.
Hello KlynnG! I would love to hear more about your story and get in touch. Not sure how to send you a direct message via this Forum so can you please email me and we can keep in touch that way? *edit*

Last edited by Chemar; 08-20-2011 at 12:06 PM. Reason: email address removed fro privacy...best send PMs and exchange email that way
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Old 08-20-2011, 12:08 PM #12
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Chemar Chemar is offline
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Chemar Chemar is offline
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Hi
to send a private message here you can do it from either your User Control Panel (CP) or by going using the drop down menu under another member's user name

I removed your email address as we discourage members from posting those....these forums are indexdc by the search engines and I dont think you would like the spam that may come to your email box from that!
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