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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-21-2011, 06:57 AM | #1 | ||
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Ihas Dx'd about 2 months ago with MG after being treated for fibroyalgia for about a year. I stopped taking the fibo Rx's for a few days and the pain came back. The MG is so hard to get a grip on. I started the IVIg treatment last week. 2 6 hr days of IV therapy. After 3 days I felt like brand new again but that lasted only one day, since then it has been downhill again. I won't have another treatment for 3 weeks. It is the sleeping disorder, depression, exhaustion and swallowing that really are the issues that get to me. Does anyone else have MG and Fibro?? thanks for listening..
cghaslam |
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