Home Menu

Site Navigation



Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

NeuroTalk Support Groups > > >

Question about mg....

Reply
 
Thread Tools Display Modes
Old 09-23-2011, 08:10 PM #1
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
  
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Heart Question about mg....
OK - MAYBE ONE OF YOU - OR MANY OF YOU CAN SOLVE THIS FOR FOR ME - WHY CAN'T WE JUST GET TRANSFUSIONS? I HAVE HAD TO HAVE A FEW AND I FELT AMAZING AFTER!

I KNOW MY PORT WILL NOT SUPPORT IT, BUT WOULD BE WILLING TO GGO THROUGH IT AS LONG AS I FELT GREAT!

ARE THE DANGERS HIGHER? DOES ANYONE KNOW WHY WE AREN'T TREATED WITH TRANSFUSIONS?

LOVE!
ERIN
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Old 09-24-2011, 07:47 AM #2
Stellatum Stellatum is offline
Senior Member
  
Join Date: Feb 2010
Posts: 1,215
15 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
Default
Hi, Erin. I was so glad to hear how far you've come!

My understanding is that blood is made up of red blood cells floating in a liquid called plasma. The antibodies that cause MG are also floating in the plasma. There's nothing wrong with our red blood cells, so there's no need to replace them--we can just replace the plasma. That's exactly what plasmapheresis does.

I'm just deducing an answer from the things I know, but it makes sense, doesn't it?

Abby
Stellatum is offline   Reply With QuoteReply With Quote
Old 09-24-2011, 09:40 AM #3
neutro's Avatar
neutro neutro is offline
Member
  
Join Date: Nov 2007
Location: France
Posts: 346
15 yr Member
neutro neutro is offline
Member
neutro's Avatar
 
Join Date: Nov 2007
Location: France
Posts: 346
15 yr Member
Default
Erin, I agree with Stellatum and if you felt better after some blood transfusions, I think that you had other problems than MG...
I'm still on one PLEX every month and I can't think living without them!
Take good care of yourself
Maurice.
neutro is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tysondouglass (09-24-2011)
Old 09-26-2011, 07:17 PM #4
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
  
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Heart HI MAurice!
AS USUAL, YOU ARE RIGHT! I WAS SO SICK AND SO ANEMIC THAT THEY HAD TO DO THAT GOOFY MARROW TEST ON ME....... YUCK!

HOPE YOU ARE FEELING GREAT TODAY!

LOVE!
ERIN



Quote:
Originally Posted by neutro View Post
Erin, I agree with Stellatum and if you felt better after some blood transfusions, I think that you had other problems than MG...
I'm still on one PLEX every month and I can't think living without them!
Take good care of yourself
Maurice.
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Old 09-26-2011, 07:15 PM #5
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
  
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Heart Hi abby!
THANKS SO MUCH FOR THE ANSWER!

HOW R YOU FEELING TODAY!

HUGS!
ERIN



Quote:
Originally Posted by Stellatum View Post
Hi, Erin. I was so glad to hear how far you've come!

My understanding is that blood is made up of red blood cells floating in a liquid called plasma. The antibodies that cause MG are also floating in the plasma. There's nothing wrong with our red blood cells, so there's no need to replace them--we can just replace the plasma. That's exactly what plasmapheresis does.

I'm just deducing an answer from the things I know, but it makes sense, doesn't it?

Abby
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Question about 6 question cdr form Bobby17 Social Security Disability 18 07-14-2013 11:36 AM
MG Question: Do I have it? mangi Myasthenia Gravis 11 01-13-2011 08:24 PM
question lady bug Social Security Disability 1 08-21-2008 02:52 PM
A question jakatak Peripheral Neuropathy 10 06-02-2007 10:25 PM


All times are GMT -5. The time now is 01:37 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home