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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Member
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Did you try calling the neurologist's office and telling them that you have myasthenia with breathing difficulties, and was started on prednisone (at what dose, by who?)
I believe that they will see you ASAP in that case. If not, you better find another neurologist anyhow. |
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#2 | ||
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Junior Member
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I'm new, too, and your thread, mw3kgt, made me want to post. I, too, had a neuro-optha dx me. I'd had a borderline AChR binding test 2 mths prior (with a terrible neuro), and the neuro-optha dxd me with MG "regardless of what the blood tests show" but ordered one more round of tests anyways. This time he added modulating, blocking & MuSK. Binding came back positive & I found out on 10/25. Since he felt it was likely systemic and not just ocular he is sending me to a neuro for treatment. I go on 11/16 and will have an EMG done. I would say it only took about 8 or 9 months to dx, but that's only after the worst symptoms of double peripheral vision and blurriness in the right eye, along with mild pstosis. I realized after I began my pursuit for a dx that I had had a droopy eye over a year ago that went unexplained. I had attributed it to allergies at the time.
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