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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Member
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Has anyone seen a specialist at Vanderbilt for their MG? Saw my neuro today and he's good, but since I am getting wose instead of better (I've had mg for 11 years and had to retire on disability a year ago), he told me he has no ego and if I want to see a specialist for a fresh look at me, he would refer me in a heartbeat. I talked to my daughter (a nurse) and we have decided this might be a good idea.
However, we want to research the docs at Vanderbilt and see the best one for MG treatment. So any ideas? Thanks. |
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#2 | ||
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Junior Member
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I have very atypical MG, with symptoms going back at least 40 years (it keeps getting longer as I keep putting the story together). This past week I was seen at Vanderbilt. They have an MDA clinic on Thursday and they have many doctors specializing in MG, CMS, and other myopathies. I was not seen in the clinic, but by Dr. Lee, who was recommended by another MG patient. The wait time was August 1 when I saw my local neurologist to October 18. I posted my visit under the " neuro won't do further tests ". It was a good experience.
nc |
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#3 | |||
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Member
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Hi NC - thanks for the info. I'll look up Dr Lee and see if my neuro will refer me.
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