Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

Reply
 
Thread Tools Display Modes
Old 11-10-2011, 09:14 PM #1
pingpongman's Avatar
pingpongman pingpongman is offline
Member
 
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
pingpongman pingpongman is offline
Member
pingpongman's Avatar
 
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
Default

One thing I have come across. My nearest hospital is not able to handle a MG crisis. I have to travel 25 miles to get IVIG treatments but the hospital 3 minutes can't give that treatment. I suggest you check now to find out who can handle any problem you might have with MG.
Mike
pingpongman is offline   Reply With QuoteReply With Quote
Old 11-10-2011, 11:11 PM #2
Ravenred Ravenred is offline
Junior Member
 
Join Date: Nov 2011
Location: Northern IL
Posts: 31
10 yr Member
Ravenred Ravenred is offline
Junior Member
 
Join Date: Nov 2011
Location: Northern IL
Posts: 31
10 yr Member
Default

Quote:
Originally Posted by pingpongman View Post
One thing I have come across. My nearest hospital is not able to handle a MG crisis. I have to travel 25 miles to get IVIG treatments but the hospital 3 minutes can't give that treatment. I suggest you check now to find out who can handle any problem you might have with MG.
Mike

Good point to consider. BTW - does any one wear a med alert? I use to wear one for med allergies (which after all the reading I've been doing may actually not be allergies! -
Ravenred is offline   Reply With QuoteReply With Quote
Old 11-11-2011, 09:20 AM #3
Brennan068 Brennan068 is offline
Member
 
Join Date: Oct 2008
Posts: 313
15 yr Member
Brennan068 Brennan068 is offline
Member
 
Join Date: Oct 2008
Posts: 313
15 yr Member
Default

Quote:
Originally Posted by Ravenred View Post
Good point to consider. BTW - does any one wear a med alert? I use to wear one for med allergies (which after all the reading I've been doing may actually not be allergies! -
I don't wear a med alert but I do have a wallet card that Dr. Nicolle put together for the Ontario MG chapter. It has instructions to the doctor and a list of drugs that can worsen a MG crisis. It also has a spot for your Neuro's contact info and your GP's contact info.
Brennan068 is offline   Reply With QuoteReply With Quote
Old 11-14-2011, 08:04 PM #4
Shari_W Shari_W is offline
Member
 
Join Date: Aug 2009
Posts: 241
15 yr Member
Shari_W Shari_W is offline
Member
 
Join Date: Aug 2009
Posts: 241
15 yr Member
Default

Quote:
Originally Posted by Ravenred View Post
Good point to consider. BTW - does any one wear a med alert? I use to wear one for med allergies (which after all the reading I've been doing may actually not be allergies! -
Yes, I wear a Med Alert Necklace. When I was diagnosed many moons ago (lol...17 years ago) I was able to get my first Med Alert Bracelet for free. Now I think I pay $35.00 per year to keep the membership and all the info updated. I recommend all MGers wear a Med Alert Necklace or Bracelet. I just feel more comfortable wearing mine, especially when I am out in public.

I love your sense of humor about the tooting! It made me crack up when I read your post. Laughter sometimes is the best medicene. At least it makes you feel good for the moment anyway

Shari
Shari_W is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Learn from my mistake knittenkitten Multiple Sclerosis 8 06-14-2009 08:16 PM
Mistake on MRI sheena Multiple Sclerosis 5 08-04-2008 07:11 AM
by mistake!! Cedar Epilepsy 3 01-16-2008 08:40 PM


All times are GMT -5. The time now is 11:28 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.