Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 12-30-2011, 07:40 PM #1
Musicjunky1 Musicjunky1 is offline
Junior Member
 
Join Date: Dec 2011
Posts: 16
10 yr Member
Musicjunky1 Musicjunky1 is offline
Junior Member
 
Join Date: Dec 2011
Posts: 16
10 yr Member
Help Don't know what to do

I have all the symptoms of MG: Droopy eye, slurred speech, muscle weakness, numbness and tingling, muscle twitching, trouble aspirating my own saliva and drinks, tongue pulling and tired muscles under my chin when talking or chewing. I also have a heavy feeling in my arms and legs. My problem is all three blood tests came back negative as well as the EMG. I have been referred to Mayo and I am awaiting my appt. I am at wits end as they won't even try Mestinon to see if it might help or anything else for that matter. Does anyone have any suggestions? I have asked for the chest MRI and Tensilon tests but they have not been ordered because the EMG was negative. I appreciate any help you all can give.
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