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Old 01-14-2012, 10:50 PM #11
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Yikes how scary is that!!! I always take my wife with me for infusions. That sounds like my local hospital. When I was in there the nurses and doctors(?) had no clue what MG was. One nurse wanted to give 3 60mg tablets of Mestinon in one dose instead of my time release plus I had to get my wife to bring in my Meds because the hospital didn't have them.
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Old 07-31-2012, 12:02 PM #12
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Quote:
Originally Posted by singergal64 View Post
Hi Everyone!
I am old MG'er, going on 5 years now since diagnosis and thymectomy. The trouble i'm having is a blanket of discouragement or feelings of depression after I have the IVIG treatment, along with a headache and my joints aching. I have been having them 1 every other week for a year now. Is anyone else experiencing this? I'd really like to know.
The headaches could be from the ivig being infused to quickly, are you being pre-medicated before you infuse? the depression is probably your body reacting to the IVIG. But I would definately speak to your PCP about it. Im having a round of chemo and IVIG for pancreatic cancer and after each of the IVIG infusions i also feel extremely depressed. but i thought it was just my reacting to my diagnosis but then i noticed that i only feel depressed after the ivig. I was also having headaches and joint pain but my PCP just started me premedicating with benadryl and vicodin and they both went away. Hope yours does too..thanks for posting, until i read ur post I thought i was just imagining it.
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