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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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01-14-2012, 04:22 PM | #1 | |||
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It just occurred to me -- it must sometimes seem like I (perhaps we?) give conflicting "signals" to newbies.
Sometimes, I tell newbies that MG isn't ALL that bad. Sometimes, I tell newbies that MG is MUCH more serious than they realize. So.........MG is a "tightrope".......a fine line between being nonchalant and being anxiety-ridden over our condition. When I say that MG isn't all that bad, I am trying, in part, to get a "newbie" to calm down. Anxiety does us NO FAVORS! But, as I have ALSO said in other threads, I had rather have MG than cancer, ALS, Alzheimers, and quite a few other conditions. So, in my opinion, compared to some other things, "not so bad". When I say that MG is serious, I am trying, usually, to get a "newbie" to realize that MG CAN knock you clear off of your feet. Thanks to "modern medicine", the mortality rate has gone down, but intubation is still a distinct possibility. It is hard -- we can't be too indifferent -- or too uptight. Like Goldilocks and the Three Bears -- we have to find the bed and the porridge that is JUST RIGHT! I don't know -- is this making any sense?
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