I am feeling AMAZING one week after my first maintenence dose of IVIG.. I had forgotten how it feels to feel "normal"!! it has been so long, still not back to my old normal.. but hey Ill take this as a new normal!
Anyhow, I was curious if anyone else had side effects from IVIG like this - i have a rash on my palms and feet- like teeny tiny blisters they itch a little, but not a lot.. my neuro wanted me to see a dermatologist to see if it had anythign to do with all my wierd neuro symptoms, but 'im thinking a reagular dermatolgist won't know if this looks like an "ivig reaction" rash..

Also, anyone else get chest pain at the beginning of their infusions?? I noticed it both times- just a wierd chest pain for the first 15 or so minutes and then it gets milder as time goes on.. but my chest was kind of "sore" for about a day afterwards too- and then i just started feeling great.. soo just curious if i'm "normal" with these side effects! Hope yall are all doing well!

Nope haven't had that. I got a treatment today, I will ask the nurses. They are very helpful and knowledgeable.
Mike

I would get medical attention for this before any further infusions:

http://dermnetnz.org/treatments/immunoglobulin.html

Yes, you need to discuss this with your doctor ASAP.

I used to get 2 tiny itchy bumps at the base of one of my fingers after every infusion. Same place, every time. The brand was changed and that has not been a problem since. However, on my IVIG instruction sheet, it said it was very important to make the doctor aware of such reactions.

I have had those symptoms a few times. It's been five years on the ivig for me. They are normal, try taking Benidryl before your treatment, it works for me.

Glad you are feeling better.

I have been getting infusions for 3 yrs. Three times, once the next morning and twice the same night, i got a rash on my right thiegh. When I told my neuro about it, he said that was unusual because any reaction to IGIV's usualy appears on the chest. it was like he did not believe me.

The worst of the 3 reactions happened the only time I did not pretreat with Benidryl.

Tony

Thank yall so much!! Yea, I had mentioned it to my neuro at last appointment - she didn't think that it was related to the IVIG and wanted me to see a dermatologist in case it was a missing puzzle peice to this whole thing, but I have a feeling it is from the IVIG.. and therefore the dermatologist might not know much about that (it's a suburban dermatologist). It doesn't bother me much and is a SMALL price to pay if the IVIG helps me feel like this!! I love it! I told the infusion nurse about the chest discomfort, she said that is pretty common from what she sees, that it's usually just a rate issue.. they went pretty slow - we only got to 75.. she said some people just get chest pain every single time.. I might take a benadryl when I get home too, i wonder if that will help - they give me 25mg before- but just that knocks me out!
Thanks so much yall, yall are great!

Hello! I was reading your post and I have the same side effects. I get that Ivig rash too and it is very annoying. I get it in between my thighs and i have to wear spandex or pants to keep my legs from touching because if I don't it will get much worse. I also have that chest pain but mine almost feels like it radiates out into my whole rib cage and feels like knifes are stuck in me. The pain is made worse by breathing or moving and today I am worried because I just got my Ivig treatment a couple days ago and I'm aware that Ivig can cause blood clots and I'm thinking about going to the hospital. I just hate to go sit In the er for 4 hours so they can tell me it is viral plerasy like the last time.