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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Fill us in on your first treatment, please.
Mike |
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#2 | |||
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Well, I had my first infusion yesterday - it took about an hour and went without any problems. They gave me an anti-nausea (zofran) IV and I took another one last night before I went to bed. I haven't had any nausea or other side affects at all. I'm tired today, but I think that's because I've been dog sitting 2 chihuahua's for my daughter for 3 days and sleeping with them and my own yorkie has been eye-opening (literally). Fortunately, they picked them up this afternoon and tonight I will finally be able to move in my own bed without repositioning 3 dogs! My yorkie has slept with me for 8 years and she knows how to get out of the way!
So far, so good! My neuro called me yesterday morning before the infusion and we discussed the Cellcept. We decided to leave it at 3,000 for the first month and start reducing it next month. Will post an update after the next treatment on April 2. |
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"Thanks for this!" says: |
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#3 | |||
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Thanks for the update. This is all so interesting.
Mike |
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#4 | |||
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Had my 2nd treatment today - I've noticed some improvement in being able to focus my eyes when I first get up in the morning - it has been at least a year since I've been able to focus both eyes on the same thing (I have to wear a patch at all times). It wears off after about 5 minutes, but it is an improvement. My doc said that if I continue to see only small improvements or no improvement at all, next month we'll up the dose a little. Fingers crossed! I'm not having any nausea or problems at all.
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"Thanks for this!" says: | pingpongman (04-03-2012) |
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