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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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Thanks for your response---at this point I don't know what my problems are due to
I've been pretty stable, without neurology interference for ~2 years---it is just tha now I'm having increased problems and am concerned it might be due to my prio disc issues or one the the other herniations that were only mild-mod in 2003 I've has Brain MR's, which off course are indeterminate---several small bright lesion which are essentially unchaged since 1996, so I can see how MS could be out of the picture When I finally got the cervical MR (to shut up my whining) they found a herniated disk compressing the cervical cord (more on the left) and I had urgent ACF---which did improve alot Then I started having breathing issues and swallowing issues (modified barium swalows consistently show mild problems and intermittant penetration), modulating Abs are positive, binding negative 1 borderline and 2 negative SFEMGs, but mestinon helps my swallowing (so I continue it as I'm willing to accept a placebo effect---I don't enjoy drowning from a glass of water)---so MG is likely ruled out I'm all for it being psych---as long as I can get rid of it---I've definitely had my share of depressive episodes---but I just don't know in this case---I can't convince my psychiatrist or PCP, by the expert at the large Univesity meets me 1-2 times and proclaims it conversion and now everyone else are bowing to his genious I'm just annoyed and confused---I likel data and would like some hard data either way---right nowall I have is mush and an "expert's" gut feeling Sorry to rant...I'm just ******---I didn't expect them to no even see me Thanks |
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