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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Grand Magnate
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Hi, Jeatak. Welcome.
Quote:
![]() Are you sure you didn't aspirate something into your lungs, thereby getting pneumonia? Those kind of infections are hard to get rid of. Did they do a chest x-ray? You might still have an infection. Infections can make MG worse. Vicious cycle! ![]() I think you need to talk to your neurologist. Obviously, Mestinon is not enough for you. You might have to change the spacing between doses and possibly go down a bit on the dose amount. Sometimes it's more important to have a consistent supply of Mestinon and not necessarily a huge dose. I am on 90 mg. every 3 hours but that's what works for me. Everyone is different. Don't change things until you talk this over with your neuro. We have 640 skeletal muscles that MG antibodies can attack. That includes the esophageal/swallowing muscles. It can affect peristalsis, how food moves through the GI tract, too. You may want to make sure you sip on some cold water between bites of food. Not too cold! Also, what Brian suggested about seeing a specialist for a swallow test is a very good idea. Talking a lot will stress out the eating/swallowing muscles too. Crying too. So think about what muscles you are using during the day and, by the end of the day, they will be more weak! I hope you can find some relief or better/more treatments. Good luck! Annie |
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