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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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04-05-2012, 09:27 AM | #1 | ||
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Junior Member
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Hello guys,
First of all I am sorry as I write here and I do not have MG. I am 25 years old, and I have mutliple disabling/severe conditions. Recently, a thymic mass was discovered and surgery is recoemmended due to the unknwon nature of the mass. They cannot tell by means if radiological findings if it is a thymoma, thymic hyperplasia or another mediastinal tumor. Given some of my new issues (extremeley painful neuropathy) a paraneoplastic syndrome could be going on which could improve after tumor removal. Anyway, I am going to have this mass with my thymus removed via a median sternotomy. I dont find much information about thymectomy outside the MG world, thats why I came here. So here are my questions and I would be very gratfeul if I could get some answers. 1. how long does thymectomy via sternotomy usually last? I was told something about 1-2 hours - is this true? 2. most important: if you felt improvement of your MG symptoms after surgery - how long did it take for you to notice first improvements? And how much have you been improving after surgery overall? 3. was there any problems with your GI system/intestines? as I have a severe intestinal dysmotility disease this question is quite important as well. Thanks so much. Sarah |
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