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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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I am 30 years old and have to wear an eye patch, I was dx 4 months ago and was so weak I fell down the stairs with my 8 month old baby! I was dx with Graves disease, and the mg progressed VERY fast 2 weeks later I could barley walk at all. So did something trigger the mg??? Or just a coincidence?? Who knows!!!!
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#2 | |||
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Member
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Ok, folks STOP wearing the eye-patch!! I went to a neuro-opthalmologist and his tech fixed a pair of glasses for me with SCOTCH TAPE -- YES, SCOTCH TAPE!!! Here's what you do. Figure out WHICH eye is dominant. My right eye is dominant. So, he put the FUZZY-looking (NOT the clear kind) of Scotch tape over the lens of my left eye (non-dominant). IF you do NOT yet NEED glasses, you could get a pair of those el-cheapo kind at a dollar store and just KNOCK out the lens on the side that you will need to LOOK through -- and put tape on the side you need to cover. I'm telling you, the scotch tape makes the glass JUST blurry enough that you won't be able to focus and it is amazing. When people see me, now -- I almost look "normal". They can see the shape of my eye through the "semi-transparent" tape -- and it takes a second or two for them to figure out something is different. It is not NEARLY as distracting as an eye-patch!! And it lets LIGHT into your eye!!
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~jana |
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"Thanks for this!" says: | DesertFlower (04-13-2012) |
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#3 | ||
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Quote:
How do you pretend you're a pirate with scotch tape instead of a cool eye-patch? ![]() |
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#4 | |||
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Of course, we girls have to think about our "beauty" and trying to "fit in" -- LOL!!
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~jana |
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#5 | |||
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Member
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Oh I played a pirate for a year. The kids really stared at me in the stores.
Mike |
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#6 | |||
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Member
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Thank you! Thank you! Thank you! I just made my first trip out using the scotch tape instead of a patch and it worked! Much easier than a patch and my glasses sat straight on my nose. Yea!
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#7 | |||
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Quote:
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~jana |
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#8 | ||
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New Member
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I am 57 and have been diagnosed for 2 1/2years. Can I ask why so many are wearing eye patches? Is it due to double vision or droopy eyelid? Has anyone gotten or heard of eyeglass crutches? I'm having a terrible time with my eyes. Thanks.
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#9 | ||
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Member
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An eye patch eliminates double vision but it impairs your depth perception. You can drive but definitely you have to be a aware of that.
My vision is not bad enough to require glasses for driving. The optometrist did not think I needed glasses because the prescription was so minimal. I insisted. I did the same thing Jana did but I used a black marker to paint the tape but maybe I did not have to paint it. I don't know now because my DV is gone but the little bit of improvement in the one eye eliminated the blurry vision in that one eye. I still wear the glasses without the covering when I am driving because I still have a little bit of blurry vision and using them makes driving much easier and eliminates headaches. Tony |
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#10 | |||
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Member
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For me, it is double vision - I can't drive or read without some type of eye patch. I see 2 clear images, one above and to the right of the other. My right eye muscles are the ones affected, the ones that hold the eyeball down in a alignment with the left eye.
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