Alice md...

RE: your #9

In your experience/opinion/belief, is this statement true of any type of MG...ie. that there is no permanent damage? I know this may not be able to be scientifically proven (am I right in saying this?), but I wonder for the following reason.

My neuro has offered to put me on pred to prevent 'further stress' to the NMJs and with the possible hope of remission. Since I do just fine on Mestinon, I have always refused the offer (for 3 years now). My thinking is that I don't want to use a hammer on something that can be handled with a fly swatter. And, worse case, I could always use the pred later if necessary.

Thanks for your thoughts