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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Grand Magnate
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BackwardPawn, Everyone reacts differently to meds. I know of another MGer who also has pain issues and is fine with OxyC. Tramadol, however, is usually NOT good for MGers. It interferes with acetylcholine production.
Have you had your CPK (creatine phosphokinase) checked? How about your vitamin D level? Muscle pain is a classic symptom of a vitamin D deficiency. It sounds like they didn't do enough investigating before they threw a pain med at you! It's always a good idea to find out WHY something is going on before you treat it. ![]() Going off of those pain meds can cause a rebound in symptoms, so going off has to be done carefully. A pain specialist should work WITH your neurologist to figure out what to do. Problem is that doctors often don't know how to work well together. ![]() A 2nd opinion is not a bad idea, if you can find an MG expert in your area. Good luck with figuring out what works for you. Annie |
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