Was at the neurologist yesterday and he is considering having me try Cellcept and asked me to look into the drug and see what I thought. Did my online research and of course there are the usual not too nice side affects. Any one out there that has been on Cellcept for a while and can maybe tell me what your experience with the drug is. I have been on Prednisone since a MG crisis in December and had a very hard time dealing with the side affects but thankfully I will be off it soon. Even had trouble at first with the Mestinon as too high a dose gives me terrible intestinal issues. Only take a half pill at a time unless I am feeling really lousy. My body seems to be quite sensitive to most medications. Would appreciate any info y'all have. Thanks and have a great day.
AL

I've been on it for about 9 months. I started seeing improvement around the six month mark. I went from needing a walker to getting around almost normally. I'm still limited in how far and how fast I can walk, but its a large improvement for me. I also had Rituxan around the same time, so I don't know how much improvement is from each. As far as I've been able to tell, I've had very little side effects from either Cellcept or Rituxan, but then it would be hard to tell with the horrible Prednisone side effects.

Sorry I couldn't be more help, but I can say that with all the meds I'm on (Cellcept being one of them) something is working right.

I took Cellcept for 5 years without any definite results (nor side-effects...).
I stopped taking it 3 months ago and feel somewhat better!
Maurice.

My daughter was diagnosed in December and has been on Cellcept since then. Started at 1000/day and has increased to 3000 mg/day now. She is doing well. The only side effect is a cold sore on her lip each time she raises the dose. It is alleviated by Abreva cream. Her cell counts have been good so far. No other side effects. Still watching things closely though.

Thanks for the input, much appreciated.

to separate Hi there! I've only been taking cellcept for a week now. As people say ALL meds have side effects! I am currently on Pred 60mg, since July2nd. On june 24th I had my first crisis and had to do 5 rounds of IVIG. Mestinon 60mg pills that i've' been taking 3X daily after 9 mos. My nurse that gives me my IVIG said that IVIG helps keep infections away. The only thing I have noticed is that all my fingers are very numb, I noticed this after the IVIG treatments. Does anyone else have numbness. This is not a good feeling cuz it hurts! Have a nice day! oobadoobaQUOTE=bu452000;879582]Was at the neurologist yesterday and he is considering having me try Cellcept and asked me to look into the drug and see what I thought. Did my online research and of course there are the usual not too nice side affects. Any one out there that has been on Cellcept for a while and can maybe tell me what your experience with the drug is. I have been on Prednisone since a MG crisis in December and had a very hard time dealing with the side affects but thankfully I will be off it soon. Even had trouble at first with the Mestinon as too high a dose gives me terrible intestinal issues. Only take a half pill at a time unless I am feeling really lousy. My body seems to be quite sensitive to most medications. Would appreciate any info y'all have. Thanks and have a great day.
AL[/QUOTE]