This was also a new symptom/sensation regarding difficulty breathing a couple of days ago........

It felt like either the lungs themselves or the muscles used for breathing had lost their elasticity and both diaphragm AND epiglottis areas stiffened for quite a number of hours. Today I feel fine - just weak coughing every now and again on saliva... and tomorrow first visit to my new doctor who wanted to research all my notes over 5 weeks so we´ll see what he has say.......

What did doc say...esp about breathing issues?

Hi suev,

Hope you are having a nice day.

My new doc didn´t say so much about the breathing problems. I did not present with any that early in the day.

(I had been more worried about choking on thin liquids, and even worse on vapors)
He will refer me for a SFEMG which would take about 6 months and that if results are negative then he would go ahead and treat whatever myasthenic symptoms may arise......

A.

6 months for a SFEMG...that's a long time!

So, be very careful through hot summer. If you do have MG, getting overheated (or overstressed for that matter) really makes MG worse. Take care.

It took a long time to realize that I was going round in circles myself and even being caught between them! A few months ago I set out to find a straight and direct line out….. I was semi diagnosed abroad with myasthenia but there wasn´t much mileage with that diagnosis here in my own country and that caused all sorts of problems.

I ended up finding a new doctor (only 10 mins from my house) who is AMAZING!!!!!!! First of all, he is only a general practitioner but is quite supportive to the fact that I may be negative in all the tests and still have myasthenia and he is willing to work with me on this.
He not only has a good attitude but he also referred me DIRECTLY to the university hospital´s neurophysiological laboratory for RNS, EMG, and SFEMG testing in just 2 months time (I didn´t know they could just bypass the neurologists like that!)

Got the letter in the post just 2 minutes ago and though the tests I think are kind of a few years late in coming, getting them is a milestone in itself.

Thanks for everyone´s help so far – the forum is great for info, support and in my case staying grounded!

Happy Summer everyone

And just in case you are still reading, Annie, this one is for you