Many of us - especially if the initial diagnosis is made because of "ocular" suspicions - will test negative for MG.

The MRI is done to rule out a brain tumor, the CT scan is done to look for a possible thymoma. An MG diagnosis in the absence of positive bloodwork is a diagnosis of "elimination" - a doctor will rule out other things first.

If those tests come back negative, the muscle tests are performed. You indicated that your muscle tests came back suggesting there might be a problem, so that's another data point for your doctor.

If your MRI and CT results come back negative, the next thing that you can ask your doctor to do is a Mestinon trial. If you don't have MG, you will NOT be able to tolerate even a small dosage of Mestinon. If you are able to tolerate it, chances are that MG is what you are looking at.

You don't want to be on Mestinon when these other tests are being run, as it can skew the results of those tests.

While you are waiting for the results to come back, PLEASE treat yourself as if you DO have a positive diagnosis - by that, I mean take it easy. Don't over-exert yourself, and don't try to "exercise" yourself into feeling better (if you have MG, that's DEFINITELY not gonna work).

Allow yourself to rest and relax - it really is the best thing for your body. Let your family and friends know your limitations, and don't be afraid to ask for help if you need it.

Like I said, we are here to help you navigate your way through this - ask away (or complain!). And always remember - there are no "stupid" questions....