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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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Restorative,
I felt exactly like you did with the chest discomfort! In the year and a half before I was diagnosed with MG, I went to see a cardiologist twice for EKG's and all was OK. I thought I needed Xanax to calm down as it felt like a very mild panic attack. It usually happened in the morning when I woke up and wasn't doing anything strenuous. Now, since I had a thymectomy last month, these syptoms have disappeared! I didn't have a thymoma, but my thymus was slightly enlarged. Just something else to keep in mind. Our body seems to know when something is off. |
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#2 | |||
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Junior Member
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Texas that's amazing, thank you for sharing. I have an MRI next week and although it's of my brain and cervical spine, I asked the doc if he would include the thymus in the imaging. I tell ya, my gut tells me it's just GOT to be related to that.
It and MG makes too much sense now... droopy eyelids, blurred vision after much eye use, weakness symptoms increase with physical activity, chest pain/pressure near the thymus, feel like a new person after rest, all of that. |
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#3 | |||
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Member
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Even if those tests come back negative, keep on insisting on the other tests. Too many doctors will stop if one or two tests are negative - they don't understand HOW we feel, and we look "just fine" on the outside.
If everything comes back negative, INSIST that you be allowed to do a Mestinon "trial" - for many of us with no "positive" indicators, being able to tolerate Mestinon is an almost foolproof "diagnosis". It's important to know if you have MG; otherwise, you may feel "guilty" for not doing more around the house, and you could put yourself in a crisis situation. It's vitally important that ER staff know if a patient does have MG; otherwise, "treatment" could end up going south fast (there are some medications that are absolute no-nos for people with MG).... |
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