Hi friends,
I am an un-dx'd 36yo female going through the "figure it out" phase with a neurologist (see previous posts for my story). I've only been going through testing for a couple of months, have had an abnormal EMG and abnomal neuropsychological exam, and some findings in the neurological exam.

As I read online about "muscle weakness", specifically legs and arms, besides MG, and MS, one of the things that occasionally pops up is ALS. That makes me scared!

Am I jumping to the worst case scenario? Yes. Has my doctor mentioned that term to me? No. ALS scares me because of its prognosis.

How did others of you handle this time when you knew something was wrong, but you didn't yet know what it was?

I tried my best to stay calm and not jump conclusions. The third doctor I was referred to was at the ALS Center don't have to tell you what went through my mind. Anyway turned out he was a Neuro-muscular doctor. So take it a step at the time and try to let the doctors do their job.
Mike

I wish I had some wisdom for you, but I do want to say that this was the most difficult thing for me. I didn't learn any tricks for how to handle the emotional strain of it. But if it feels difficult, it's because it is. I hope you get some clear answers soon.

Abby