Annie,
Thanks so much for your concern. Believe me, the ER crossed my mind more than once.
I felt fine all day yesterday, in fact almost normal. I took some thyroid meds this morning since I had been off it for two days. I have had some weakness, but not profound like before, and no major twitching. But I definitely feel that the thyroid meds are making me worse.
If I start to get back like I was before, I will definitely get attention.
I live in a very rural area, though, and if I call 911 they will come and take me to "Hooterville Hospital", which would probably worse than no care at all. If I go to the hospital of my choice, where I would get better care, I would have to drive myself because I am here alone due to the holiday weekend and everyone off on their own adventures. Don't worry, though. If I get feeling awful like I did the other day, I will definitely call someone to come get me.

Since I was feeling so good yesterday, I had big plans of doing all sorts of things today. I went to Walmart to get a few things I needed for my big plans. It was hot in the garden area and that made me feel weaker, so I got out of there and back into A/C which helped. I got myself home and in the house and my things are still in the car. But that has been my life for a while now. Even before I had even heard of MG or its symptoms, I have had to adapt to my fluctuating weakness and intolerance of heat.
I promise to be very careful till I go back to the doctor this week. Again, thank you for your concern.

Linda, I do understand the adapting thing, since I did it for years too. The problem is, however, that you've obviously gotten worse. And you aren't on any treatments. The one mistake you can make with MG is thinking you can control it.

I am concerned that you will go into a crisis soon. They are hard to predict and you can think you're okay when you're NOT. The only way I knew I was much worse right before my crisis were my oximeter readings. I have my own at home and they were not "leveling off" to a higher reading.

You can "teach" the hospital nearest to you at some point about how to manage MG. They can learn, they DID get medical degrees. If you do go into a crisis, you do want to have the closest hospital AND an ambulance take care of you. At the very least, the EMT's can give you oxygen. When you're in a crisis or close to one, oxygen feels like running through a cold sprinkler on a hot day.

Please don't fool yourself into thinking that - at least at this point in time - you can push yourself and you'll be "ok" after getting cooled off. MG doesn't work that way.



Annie