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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Member
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Hi 4-eyes - No hair loss yet! Hoping that doesn't happen. They do a CBC and check my blood chemistry every time before I get an infusion. Doc doesn't want to take me to toxicty, just the max dose I can stand without a lot of side affects.
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#2 | ||
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Junior Member
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I'm so pleased to hear that you are doing well and are able to decrease your other medications. It is particularly encouraging to hear about the improvement (albeit brief) in your double vision. That has been my most persistent symptoms (8+ years), although I've only been on various treatments for about 2 years.
I'm keeping my fingers crossed that you continue to see improvement of your symptoms. Cate |
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"Thanks for this!" says: | Juanitad (05-31-2012) |
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#3 | ||
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Grand Magnate
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I'm glad things are going relatively good so far. I hope that continues. I know there are alternative meds to help with nausea, like mint. I'm sure cancer patients or a cancer forum would give you a lot of ideas!
I hope this pushes you into remission. ![]() Annie |
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