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Old 05-29-2012, 11:34 AM #1
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
Default what should my next treatment be?

I just saw my neuro. Right now I'm just on Imuran (200 mg.). I think I may be a bit better--it's hard to tell, because I'm so up and down. But I think the downs are a bit shorter and farther between than they used to be. I'm not really sure. I'm definitely not getting worse, at least.

Here are my options:
--Increase the Imuran (my neuro isn't sure if he's willing to go higher than 200)
--Start low-dose Prednisone (my symptoms aren't severe, so I've been avoiding it)
--Start cyclosporine (he says it's so toxic that a year or two is all most people can handle before their kidneys suffer)
--Start CellCept (he doesn't recommend it--he doesn't believe its effective)
--have a thymectomy (see my other post)
--do nothing and hope the Imuran starts working better (I've been on it a year, but only a few months at this dose)
--and? Anything else I should consider?

My neuro leaves an awful lot up to me. I am pretty well informed, so I guess I appreciate that. But I'm frustrated that this is going on and on and on--I feel we haven't exhausted all our options yet. But since my symptoms are relatively mild (eyes OK, no breathing trouble) we're not willing to do radical and dangerous things.

I would greatly appreciate some suggestions.

Abby
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