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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I just saw my neuro. Right now I'm just on Imuran (200 mg.). I think I may be a bit better--it's hard to tell, because I'm so up and down. But I think the downs are a bit shorter and farther between than they used to be. I'm not really sure. I'm definitely not getting worse, at least.
Here are my options: --Increase the Imuran (my neuro isn't sure if he's willing to go higher than 200) --Start low-dose Prednisone (my symptoms aren't severe, so I've been avoiding it) --Start cyclosporine (he says it's so toxic that a year or two is all most people can handle before their kidneys suffer) --Start CellCept (he doesn't recommend it--he doesn't believe its effective) --have a thymectomy (see my other post) --do nothing and hope the Imuran starts working better (I've been on it a year, but only a few months at this dose) --and? Anything else I should consider? My neuro leaves an awful lot up to me. I am pretty well informed, so I guess I appreciate that. But I'm frustrated that this is going on and on and on--I feel we haven't exhausted all our options yet. But since my symptoms are relatively mild (eyes OK, no breathing trouble) we're not willing to do radical and dangerous things. I would greatly appreciate some suggestions. Abby |
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