sitting still for a long time makes me weak

AnnieB3 · 05-31-2012, 08:33 PM

Your primary doc could test your levels of Hypocretin. It's interesting that you were diagnosed with seizures when you were younger. Did you know that celiac can cause all sorts of brain issues?

A loss of acetylcholine can affect the brain too, so maybe it's not so coincidental. Just a thought.

Annie

Stellatum · 06-01-2012, 06:50 AM

Thanks, Annie. I'm casting my mind back to see if there was any symptom I might have had a long time ago without understanding it that would shed light on things.

I never got diagnosed with seizures. They worried me for a while (this was 20 years ago) and then went away--I never went to the doctor. I haven't had one since.

As for the narcolepsy idea, the thing about these episodes is that they don't make me sleepy--just rag-doll weak.

Abby

AnnieB3 · 06-01-2012, 11:41 AM

You don't have to feel sleepy though. I think your neuro will find it all quite interesting!

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