Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

Reply
 
Thread Tools Display Modes
Old 06-01-2012, 07:00 PM #1
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default

Abby, Yes, HKPP is a C. So can epilepsy be. Hmmmm.....

Here are a few articles. There weren't so many years ago but this area has sort of turned a "light" on in scientists brains. It's about time.

www.ohsu.edu/nod/documents/2007/Hanna%202006.pdf

dels-old.nas.edu/USNC-IBRO-USCRC/resources/noebels.pdf

This was a good "history" of the little ion devils.

http://brain.oxfordjournals.org/cont...5/12/2788.full

And I simply find this "interesting," since a friend of mine died of ALS.

http://www.cell.com/neuron/abstract/...273(10)00620-3

So maybe all the pieces do fit nicely into a channelopathy. If so, you're right - anesthesia could be dangerous.

I wish everyone could focus on HEALTH from birth, including ridding our planet of toxins, deciding that bad food IS bad food and shouldn't be given to kids and so many other things that are good for us being taught when we're young like meditation. The power of "energy" to heal is truly amazing.

I hope you find answers. You may need a 2nd opinion again from a channel expert.

Annie
AnnieB3 is offline   Reply With QuoteReply With Quote
Old 06-02-2012, 06:57 AM #2
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
Default

Thanks, Annie. I think that if my neurologist decides it's worth looking into, he'll send me to someone, even if I have to travel. I appreciate the links. By nature I'm an information-gatherer (there's a touch of Asperger's in my family), and I find this stuff fascinating even if it ends up not to have anything to do with my condition.

Abby
Stellatum is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 08:49 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.