[limpy]

I thought it was my imagination yesterday, but today I am sure of it.
My eyes were actually open all the way when it kicked in! I had gotten so used to them being so hard to keep open and lifting my head to look out that I didn't realize it at first. But I went and looked in the mirror, and yep, they were open.
My endurance for ordinary tasks is better, such as climbing a couple of steps, walking around Walmart, etc. But, when it wears off, I can tell right away. The first thing to go is the lower lip. It starts hanging a little and shows my lower teeth and when I try to stop that it gets wiggly. Then the eyes start drooping again. I also start feeling really weak and shaky.
I guess my next question is: Does this mean that I for sure have MG? Or does any other disease respond to Mestinon? I never thought I would "want" to have a serious disease!!!
Not really. Just want to know how to treat it. Have already been dealing with it for a long time.

[hospital_pharmacist]

Hi
I read quickly your post and i understood you are wondering if having MG or not. I suppose that if Mestinonworks for you , since it's a drug used only to treat MG, then you have very probably MG.
This happened to me too even if i don't have yet a diagnosis of MG too.
Good luck

Cristina

Originally Posted by limpy

I thought it was my imagination yesterday, but today I am sure of it.
My eyes were actually open all the way when it kicked in! I had gotten so used to them being so hard to keep open and lifting my head to look out that I didn't realize it at first. But I went and looked in the mirror, and yep, they were open.
My endurance for ordinary tasks is better, such as climbing a couple of steps, walking around Walmart, etc. But, when it wears off, I can tell right away. The first thing to go is the lower lip. It starts hanging a little and shows my lower teeth and when I try to stop that it gets wiggly. Then the eyes start drooping again. I also start feeling really weak and shaky.
I guess my next question is: Does this mean that I for sure have MG? Or does any other disease respond to Mestinon? I never thought I would "want" to have a serious disease!!!
Not really. Just want to know how to treat it. Have already been dealing with it for a long time.

[limpy]

Thanks, Cristina.
My neurologist is pretty sure I have MG, but wants to do single nerve fiber test to pin down the diagnosis. If that does not show anything he wants to do a muscle biopsy. He told me he wants to rule out other diseases that are basically untreatable before he treats me more agressively for MG.

Originally Posted by hospital_pharmacist

Hi
I read quickly your post and i understood you are wondering if having MG or not. I suppose that if Mestinonworks for you , since it's a drug used only to treat MG, then you have very probably MG.
This happened to me too even if i don't have yet a diagnosis of MG too.
Good luck

Cristina