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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-08-2012, 08:12 AM | #11 | ||
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I smiled when I read about your shopping problems. My husband does the grocery shopping since I got MG, and he's not the detail-oriented person I am (the other day he came home with corn starch instead of corn meal for example). I try to think of it as something to let go of, which is pretty easy because he's so sweet about the extra work he has to do because of my illness. I don't want to nag or berate him.
On the other hand, I order stuff on-line as much as I can. If you can do that, you can have the luxury of choosing exactly what you need. A lot of places have free or cheap shipping. I buy stuff like laundry detergent and socks for the kids that way. A trip to a big department store is a huge deal for me. Abby |
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07-08-2012, 10:59 AM | #12 | |||
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You can always order vitamins, etc. online.
You can also do "Click and Pull" at Sam's Club - for our bulk items, that makes it so much easier for our family. I just order what we need online, the staff pulls everything (even refrigerated/frozen items, which they keep in the cooler until you come to pick it up), and all you (or family member) have to do is go get the cart that it is on. They ring you up (or you can pay for it ahead of time online), and they will even take it out to your car and load it for you. I still have to send family out for some grocery items, but it sure is nice to be able to make their job a little easier with the bigger stuff. ************ As to the Vitamin D thing - many people with MG also have either Celiac Disease or Gluten Sensitivity. If you continue to eat gluten-containing products, your intestinal lining becomes inflamed and/or porous, and it is not able to absorb all of the nutrients in the food that you eat. Once they eliminate gluten COMPLETELY from their diet, they oftentimes find that their Vitamin D levels get back to normal (this also helps keep them from developing Osteoporosis). Our youngest was diagnosed with CD 4 years ago, and I found out later that not only do I have CD, but I was diagnosed with a Wheat Allergy when I was a kid (no GI issues, so never thought anything about it....). We've been on a GF routine since her diagnosis, and it has made a world of difference - I'm 51 and just had a bone density scan done; I have better bones than most 30-year-olds! I also noticed that my muscles became "stronger" without any exercise - this was before the MG diagnosis, though. They're still strong (no noticeable atrophy), but the receptors are still shot. (I don't know if it makes a difference in energy levels for someone who goes GF after an MG diagnosis) Oh, well..... |
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07-08-2012, 11:45 PM | #13 | ||
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used to do online grocery shopping. don't have the eye function to do so anymore, can't get anyone to help me do it (and when you tell a 14 year old to just do it for you, you end up with a lot of junk food he never would have gotten away with if you did it with him...).
hubby's not just not-detail-oriented, he's certifiably brain-injured (permanent post-concussion syndrome) and that and/or the meds he's on to counteract the pcs mean the more I tell him to do something, like help me do online groceries, for example, the more he won't. he will say yes, but then he just won't. ever. just like the dog hasn't had a bath since last Thanksgiving (when I spent $50 of our grocery money to have him done) even tho hubby agrees he needs it, and dog has skin/foot allergies that make him itchy so that he NEEDS washing for that, not just the "he smells like a dog" reason. He says yes, he does no. Unless I yell like a royal b*****, and I just don't care to do that anymore. anyway, sorry for turning it into a vent. it's just kinda tough sometimes. |
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07-09-2012, 09:16 AM | #14 | |||
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No problem, sweetie - I understand the need to vent!
Any kids/Scout troops/church groups in your area that might be able to help bathe the dog or help with grocery shopping? Or social services in your area - you might qualify for help, or they might be able to refer you to someone who can help for a nominal sum. But I hear ya about it being tough - especilally given your husband's condition. And BTDT with teenagers; fortunately mine were already pretty much grown by the time I was diagnosed. If it's any consolation, they DO turn into the most delightful adults - it's the "getting there" that's so frustrating.... |
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