Quote:
Originally Posted by alice md
You mention that your daughter is seronegative. Was she tested for MuSK?
In MuSK myasthenia, there is a much less stable response to mestinon. The shakiness you describe may be a disorganized activation of muscle fibers (called fasiculations). It is usually not dangerous but quite inconvenient.
Increased activity can make this worse, while rest leads to improvement.
In some patients a different medication (such as mytelase) may be better tolerated.
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I have been notified by Sanofi Pharm that they are no longer manufacturing Mytelase.I have been using this med for about 60 yrs and really hate to change to a new med. Do you know if Sanofi was the only co. that produced this med? Are you aware of any problems patients have encountered when they switch from Mytelase to Mestinon -which my doctor is suggesting-(other than than determining the correct dosage)? Thank you for any advise you could provide.
Phil
07-13-2012, 02:50 PM
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