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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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07-09-2012, 02:50 PM | #11 | ||
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I might ask for this skin test just to rule out coeliacs, but my GP is stingy with tests. |
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07-10-2012, 01:09 AM | #12 | ||
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Hiya,
Im glad you had the tilt table test. Fun arent they..... not! Im sorry I couldnt help you more with the double vision problem. Resting isnt an option if you are working. I no longer work so its an option I can use. I didnt realise that you were in the UK too! I hope you get this figured out it must be really frustrating. Rach x
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Diagnosed with: Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa And Myasthenia is still a possible diagnosis depending on which Dr I see. My blog address is . . Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can, And the wisdom to hideThe bodies of Doctors I shot When they said,"You're perfectly healthy, It's All In Your Head." |
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07-10-2012, 10:35 AM | #13 | |||
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I might ask for this skin test just to rule out coeliacs, but my GP is stingy with tests.
Have you ever been tested for allergies? A wheat or barley allergy will cause the same problems, but will rarely progress to Celiac Disease. If you don't think your GP will do a test (I don't know how expensive the skin test is, and like I said, it's not always conclusive), you can always just try a gluten-free diet for a month and see if you find any relief from your eczema. Bear in mind, though, that you have to be COMPLETELY gluten-free - there is no such thing as "gluten lite". For me, once I was off of gluten I felt SOOOO much better - and every time that I accidentally ate it, I started feeling just awful. Most people who have gluten sensitivity who go on a GF diet find it VERY easy to stick with the diet for that very reason. My sister-in-law and nephew (only related through marriage - we don't share any genes) were diagnosed with CD around the same time - completely unbeknownst to me - and they have said the same thing. It's almost like a "miracle". If you decide to go GF, commit to doing it for at least a month - if you're not gluten-sensitive, you won't feel a difference (but it can take a couple of weeks to get it out of your system). I always tell people that a GF "diet" is much cheaper than all of the doctors' visits and medicines I was paying for before. I still have MG, but there are a host of other conditions that I am less likely to develop as a result of an untreated gluten issue. FWIW, there is a MUCH higher incidence of CD in Ireland - they don't know why. ALL of my ancestors were from England, Ireland, or Scotland, so it's not surprising that I have this.... |
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07-11-2012, 06:06 PM | #14 | ||
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I also got bloods done for allergies to work out what made me go into anaphylaxis and I'm allergic to nuts (hazelnuts are worst), apples and pears. |
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